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Levi meets the Phillies!

In the summer 2023, Levi was a guest of honor at an MDA event sponsored by Rhys & Jamie Hoskins.  Rhys and his wife were MDA camp counselors as teenagers and hold a special place in their hearts for those living with all forms of muscular dystrophy. Levi got to meet the whole gang... Harper, Hoskins, Stubbs, Realmuto, Schwarber and more... It was a day he will never forget!

Penn State Hershey Children's Hospital awarded Duchenne's highest honor!

Levi had always traveled to Nationwide Children's Hospital in Columbus, Ohio for his Duchenne care. When his insurance stopped paying for out-of-state care he and his family were on a mission to bring the best care to Central Pa. In the winter of 2024 Penn State Hershey Children's became a certified Duchenne Center of Excellence by Parent Project Muscular Dystrophy. To date there are 38 certified centers in the United States. Levi's medical team is dedicated to provided the best care for all those living with Duchenne. 

Meet Eclaire!

Levi has a new friend and helper.  Her name is Eclaire and she is an adorable service dog, trained by a marine to help Levi with everyday tasks, like opening doors and turning on lights. She goes everywhere with Levi, even to school. In the first week, Eclaire has been to a Hershey Bears game, Chocolate World, a restaurant, grocery store and Home Depot. Looks like Levi and Eclaire will enjoy a busy social schedule together. Dogs truly are a man's best friend!

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Because NO child should be sidelined by sickness

Team IMPACT tackles the emotional trauma and social isolation experienced by children facing serious and chronic illnesses by matching them with a college athletic team. Through our two-year therapeutic program that complements their medical treatments, children develop relationships and skills that help them complete the full circle of healing.

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Philadelphia Marathon - October 2021

Lance Hains & Mitch Spittle, bestfriends since kindergarten,

ran in JETTs first Philadelphia Marathon, raising $14,000

for the JETT Foundation. 

Way to GO Lance and Mitch!!!

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In 2001, Christine and Stephen McSherry started Jett Foundation after learning the devastating news that their then five-year-old son Jett had Duchenne muscular dystrophy.

The McSherry family was determined to save Jett and the thousands of boys like him by establishing a foundation dedicated to funding DMD research that will ultimately cure this deadly disease.

The Jett Foundation has raised over $16 million dollars for promising biomedical Duchenne research and shifted its primary focus to direct service programming for families impacted by Duchenne and other neuromuscular disorders. Jett Foundation has established one-of-a-kind direct service programs and educational activities that have a proven track record of influence and meets the needs of affected families from every city and town, regardless of location, financial situation, or capabilities. 


Over the years, Luke and Lance Hains (Levi's brothers) have participated

in the JettRide, along with other family and friends of Duchenne.

Together we have raised over $17,000 for the Jett Foundation. 


Jett Ride 2021 Lebanon, PA

The Jett Ride is typically a 2-3 week cross country ride, spanning 6 states and biking 800 miles.

It was cancelled for the second year in a row due to the COVID-19 Pandemic, but the Hains family hosted their own one day JETT RIDE in Levi's hometown of Lebanon, PA.


This year's Jett Riders raised $7,000 for the Jett Foundation, a non-profit that assists Duchenne families in need. Once again, it was a huge success!

Thank you to all the riders, friends, and family for supporting this great event. 

Jett Ride 2020 Lebanon, PA

In 2020 this group of Jett Riders raised $10,000 for the Jett Foundation.

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