Rare Disease Day

February 28, 2022

According to the the National Institute of Health (NIH) there are approximately 7000 rare diseases, affecting

25-30 million americans.

Rare disease Ultragenyx pic.PNG

Levi and family participated in many events for Rare Disease Day 2022. Levi was interviewed by Ultragenyx Pharmaceutical, a rare disease company based in California. Ultragenyx spent the day at Levi's home filming "Going Beyond for Levi", a short documentary to be featured on their website soon. 

Screen Shot 2021-08-19 at 4.14.51 PM.png

Levi and his family will be spreading awareness on February 28th!  Follow Levi on his FB page to see what he is up to for Rare Disease Day.

  • Facebook Social Icon