Rare Disease Day
February 28, 2022
According to the the National Institute of Health (NIH) there are approximately 7000 rare diseases, affecting
25-30 million americans.
Levi and family participated in many events for Rare Disease Day 2022. Levi was interviewed by Ultragenyx Pharmaceutical, a rare disease company based in California. Ultragenyx spent the day at Levi's home filming "Going Beyond for Levi", a short documentary to be featured on their website soon.
Levi and his family will be spreading awareness on February 28th! Follow Levi on his FB page to see what he is up to for Rare Disease Day.