Gordon (dad), Perlita (mom), Lance, and Levi (center)
Meet the Hains family
Levi is the youngest of our 3 awesome sons. Our oldest, Luke, is a college senior, and our middle son, Lance, is a college sophomore. Then there is our sweet, funny, "no filter" Levi, who is a high school student, and a member of many clubs.
When Levi was a baby and toddler he was not meeting his milestones. At first our pediatrician was not overly concerned. We had early intervention physical therapy for 2 years to get him on the right track, but when Levi was 2-1/2 years old, our physical therapist recommended that we see our pediatrician for blood work to rule out a "muscle wasting" disease known as Duchenne MD. We had never heard of Duchenne and had no family history of any form of muscular dystrophy.
Levi is an amazing son, he loves his brothers and enjoys video games, attending his brothers sporting events, the Philadelphia Phillies, Hershey Bears hockey, as well as Penn State football and soccer. Levi is an honorary member of the Penn State's Div1 Men's soccer team through an organization known as Team Impact. Team Impact pairs special needs youth with college teams. Penn State was a natural fit and Levi really enjoys it. Levi is now in a power wheelchair, as he took his last footsteps in the Spring of 2018.
Levi moves on with positivity and laughter, which keeps us all balanced and our hearts joyful. We will move mountains for our son and do our best to find joy in each day. Levi's life may not be the one we had planned but it is and will always be a life full of hope, faith and immense love.
A Day in the Life of Levi (2021)
Jett Ride 2021
Jett Riders are the siblings & friends of Levi who rode their bikes to raise awareness for Duchenne Muscular Dystrophy. This year the group raised $7,000 for the Jett Foundation, a non-profit that assists Duchenne families in need.
The Jett Ride is typically a 2-3 week cross country ride, spanning 6 states and biking 800 miles. It was cancelled for the second year in a row due to the COVID-19 Pandemic, but the Hains family hosted another one day JETT RIDE in Levi's hometown of Lebanon, PA. Once again, it was a huge success!
See more photos on the JETT FOUNDATION page.
Thank you to all the riders and friends and family for supporting this great event.
To donate, go to Luke and Lance's fundraising page at the link below: