Perlita (mom), Gordon (dad), Luke, and Levi
Meet the Hains family
Levi is the youngest of our 3 awesome sons. The oldest, Luke, is a collegiate athlete and our middle son, Lance, is in high school and plays soccer and baseball. Then there is our sweet, funny, "no filter" Levi who is now in 7th grade.
When Levi was a baby and toddler he was not meeting his milestones. At first our pediatrician was not overly concerned. We had early intervention physical therapy for 2 years to get him on the right track, but when Levi was
2-1/2 years old, our physical therapist recommended that we see our pediatrician for blood work to rule out a "muscle wasting" disease known as Duchenne MD. We had never heard of Duchenne and had no family history of any form of muscular dystrophy.
Levi is an amazing son, he loves his brothers and enjoys video games, attending his brothers sporting events, the Philadelphia Phillies and the Baltimore Orioles. Levi is now in a power wheelchair, as he took his last footsteps in the Spring of 2018.
Levi moves on with positivity and laughter, which keeps us all balanced and our hearts joyful. We will move mountains for our son and do our best to find joy in each day. Levi's life may not be the one we had planned but it is and will always be a life full of hope, faith and immense love.
On February 13th, our much needed handicapped accessible van finally arrived! It was a special moment for us. Levi's classmates at Cedar Crest Middle School helped him celebrate by gathering outside to watch the van pull up in front of the school. Levi's classmates raised $700 for the van by holding a dress down day.
We are so grateful to everyone who contributed through the JETT Giving Fund which helped Levi get his van. Your generosity in conjunction with the JETT Foundation's matching gift made this dream a reality for Levi and our family.
A special thanks to Cesar Rivera, owner of Purple Ribbon Mobility, who did a great job on the van conversion.