Levi is the youngest of our 3 awesome sons. Our 2 older sons,

Luke and Lance, are recent college graduates. Then there is

our sweet, funny, "no filter" Levi, who is a high school senior

at Cedar Crest High School, and a member of many clubs.

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When Levi was a baby and toddler he was not meeting his milestones. At first our pediatrician was not overly concerned. We had early intervention physical therapy for 2 years to get him on the right track, but when Levi was 2-1/2 years old, our physical therapist recommended that we see our pediatrician for blood work to rule out a "muscle wasting" disease known as Duchenne MD. We had never heard of Duchenne and had no family history of any form of muscular dystrophy.

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Levi is an amazing son, he loves his brothers and enjoys video games, and sporting events, His favorites are Philadelphia Phillies, Hershey Bears hockey, as well as Penn State football and soccer. Levi is an honorary member of the Penn State's Div1 Men's soccer team.

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Levi moves on with positivity and laughter, which keeps us all balanced and our hearts joyful. We will move mountains for our son and do our best to find joy in each day.  Levi's life may not be the one we had planned but it is and will always be a life full of hope, faith and immense love.