Perlita (mom), Gordon (dad), Luke, and Levi
Meet the Hains family
Levi is the youngest of our 3 awesome sons. The oldest, Luke, is a collegiate athlete and our middle son, Lance, is in high school and plays soccer and baseball. Then there is our sweet, funny, "no filter" Levi who is now in 7th grade.
When Levi was a baby and toddler he was not meeting his milestones. At first our pediatrician was not overly concerned. We had early intervention physical therapy for 2 years to get him on the right track, but when Levi was
2-1/2 years old, our physical therapist recommended that we see our pediatrician for blood work to rule out a "muscle wasting" disease known as Duchenne MD. We had never heard of Duchenne and had no family history of any form of muscular dystrophy.
Levi is an amazing son, he loves his brothers and enjoys video games, attending his brothers sporting events, the Philadelphia Phillies and the Baltimore Orioles. Levi is now in a power wheelchair, as he took his last footsteps in the Spring of 2018.
Levi moves on with positivity and laughter, which keeps us all balanced and our hearts joyful. We will move mountains for our son and do our best to find joy in each day. Levi's life may not be the one we had planned but it is and will always be a life full of hope, faith and immense love.
Jett Ride 2020
Jett Riders are the siblings & friends of Levi who rode their bikes to raise awareness for Duchenne Muscular Dystrophy. This group raised $10,000 for the Jett Foundation, a non-profit that assists Duchenne families in need.
The Jett Ride is typically a 2-3 week cross country ride, spanning 6 states and biking 800 miles. The Pandemic of 2020 derailed the official Jett Ride, but Levi's family came up with another great option, a one day JETT RIDE in Levi's hometown. It was a huge success!
To donate, go to www.jettfoundation.org